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用户名:changkun 笔名:车子 地区: 新疆-乌鲁木齐 行业:其他 |
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2005年我决定立志和艾滋病干一辈子,这是我的理想!一个理想者,生活在自己理想中的世界中,为自己的理想而去坚守,他会看到社会的复杂与无奈,会看到肮脏和丑恶,但那些不是他内心的,他努力去做好自己能做的,以此去影响和促进肮脏和丑恶的灭绝,这就是我的路。www.xjaids.org※我QQ582765214,电邮changkun2008@msn.com,电话:13520554525(北京)
常坤新浪的博客
(作者置顶)
此博客停止更新,请看新浪的
Chang Kun- Evening of 18 October 2006
(作者置顶)
民间艾滋病组织“雪莲花艾滋病教研项目”被当地权力部门突然取缔
民间艾滋病工作者常坤受到当地权力部门恐吓威胁,被迫离开乌鲁木齐
常坤
我叫常坤,今年21岁,现为新疆师范大学四年级学生。原“雪莲花艾滋病教研项目”总协调人。
“雪莲花艾滋病教研项目”组织,成立于
自2005年以来,新疆雪莲花艾滋病教研项目已涉足校园宣教动员、受艾滋病影响的儿童、治疗和药物倡导、毒品、同性恋、乙肝歧视等领域,促进新疆高校4个学生艾滋病健康社团、若干个学生红丝带活动组的建立及各民族学生在艾滋病防治中的参与,举办了“2005新疆第二届大学生与艾滋病论坛”,组织新疆高校同伴教育,建立高校安全套免费发放点,对受艾滋病影响的儿童进行人文关怀,组织艾滋病病毒感染者第一次走进新疆高校,组织新疆青年同志自我认同讨论和艾滋病知识学习,组织公众参观新疆美沙酮维持治疗门诊,组织公众参加感染者的药物使用分享会议,帮助因疾病而引起被休学学生通过法律途径解决诉求,建立了一套信息发布和信息分享沟通渠道,定期出版《雪莲花艾滋简讯》,建立的公开邮件组已有成员千余人。2006年,雪莲花成功申请了“全球艾滋病、结核和疟疾基金”的NGO项目。
2006年5月,在全国草根非政府组织全球基金研讨协商会上,“雪莲花艾滋病教研项目”组织当选为中国艾滋病工作民间组织全国(工作网络)联席会议理事会成员。2006年8月,“雪莲花艾滋病教研项目”组织当选为中国艾滋病工作民间组织全国(工作网络)联席会议轮值主席单位。
自2005年11月起,“雪莲花”还开展了乙肝防治宣教工作,宣教乙肝科普常识,倡导消除乙肝歧视。
2006年9月,发生了乌鲁木齐市第十五中学等四所中学的19名乙肝携带者初中一年级学童被教育部门强制退学的严重歧视事件。在向学生家长等人了解情况后,我于
自从
在此,我要对“雪莲花艾滋病教研项目”被取缔一事表达我的如下意见:
1.在中国的艾滋病防治工作中,民间组织发挥了重要的作用,是中央政府所表态鼓励的。
例如,
2.未登记注册的艾滋病民间组织开展工作,得到了国内、国际的广泛认可。
例如,
3.当地权力部门取缔“雪莲花艾滋病教研项目”组织,违背了“中国政府鼓励民间组织参与艾滋病防治工作”的表态,违背了我国政府和国际社会对未登记注册民间组织的基本共识。
4.19名乙肝携带者学童被乌鲁木齐教育部门强制退学,是不人道的的歧视行为,我本人代替被退学、被歧视的乌鲁木齐乙肝携带者学童求助,是正义的;“雪莲花”的志愿者进行乙肝防治常识的宣教工作,是正当的。
5.呼吁当地权力部门尽快取消对“雪莲花艾滋病教研项目”组织的取缔。
6.呼吁当地权力部门不要继续骚扰和恐吓“雪莲花艾滋病教研项目”的志愿者,不要骚扰和恐吓我的父母。
Non Governmental Organization “Snow Lotus HIV/AIDS Education Institute”Banned by Local Authorities
HIV/AIDS Activist Chang Kun Threatened by Local Authorities and Forced to Leave Urumuqi
Chang Kun- Evening of 18 October 2006
My name is Chang Kun, I am 21 years old and I am a fourth year student at
At 12 o’clock in the evening of 18 October 2006 our organization Snow Lotus HIV/AIDS Education Institute, which has been carrying out work on HIV/AIDS cure and prevention in
Snow Lotus HIV/AIDS Education Institute was established on 16 March 2006. I am the main coordinator of this organization. Since our project was established we have actively developed work for HIV/AIDS cure and prevention. Our purpose is to protect human being’s health and promote people’s participation in the domain of public health so as to improve conditions for HIV/AIDS cure and prevention. We believe in active mobilization and the promotion of people’s participation as the best way towards prevention and advocacy.
Since 2005, the work of Xinjiang Snow Lotus HIV/AIDS Education Institute has touched on the domains of campus education and mobilization, children affected by HIV/AIDS, cure and medication advocacy, drugs, homosexuals, discrimination towards people with Hepatitis B. Our organization has promoted four HIV/AIDS university student associations, organized red ribbon student activities and participation of minority students in cure and prevention. Snow Lotus also organized the 2005 second forum for students and HIV/AIDS, organized Xinjiang university peer education workshops, set up a spot for free condom delivery, care and protection for children living with HIV/AIDS, organized the first university enrollment for students living with HIV/AIDS, organized Xinjiang debate on homosexuals self identity and HIV/AIDS education, scheduled public visits to beauty salons’ outpatient services, held public conferences on the use of medication for people suffering from contagious diseases, helped students suspended from school to make legal appeals, set up a channel to share and deliver information as well as the regular publication “Snow Lotus Aids News Brief” with more than one thousand members subscribed. In 2006, Snow Lotus applied and received funding from the NGO “Global Fund for HIV/AIDS tuberculosis and malaria”.
In May 2006, during the Global Fund conference for national grassroots and non governmental organizations, Snow Lotus was chosen as a national member of the council for NGOs working with HIV/AIDS. In August 2006, Lotus Snow was chosen as leader to preside over the national conference.
From November 2005, Snow Lotus carried out propaganda education for the cure and prevention of Hepatitis B and spread general knowledge so as to stop discrimination.
In September 2006, the Ministry of Education showed open discrimination by forcing 19 junior high school students suffering from Hepatitis B to withdraw from school. After finding out about the situation from students and relatives, I forwarded a letter of appeal to our mailing list. Thus, the incident was for the first time made known to public spheres.
On 4 October 2006, as five volunteers of “Heart and Love Education Connect Group” were getting ready to deliver material on Hepatitis B near high school number 15, local authorities stopped them and confiscated all the materials. The five volunteers were taken to the police station for interrogation. In the following days, other volunteers from Snow Lotus also became the object of interrogation.
On 10 October 2006, the incident regarding those 19 students suspended from school was reported in the national media and the main representatives of the local departments of education were condemned. After this, Snow Lotus received increased pressure from the local authorities. Even more volunteers were taken away for interrogation and there was even one university student who was held at the police station until after midnight.
On 13 October, I was interrogated for seven hours and was warned that Snow Lotus should not carry out any work again. This included withdrawal from the Global Fund HIV/AIDS Project,. I was threatened with arrest if I failed to comply with this warning
At ten o’clock in the morning of 18 October 2006, while I was doing training in the work unit, I was summoned to the security department of the university. I was interrogated by personnel from the Xinjiang NGO Legal Bureau and by police officers. After that, they came to my residence and to the Snow Lotus office together with directors from the university and carried out an investigation. At noon, the Xinjiang NGO Legal Bureau showed me the “Notice on the Legal Ban of Illegal NGOs”, a document which I had printed myself long ago, and declared the ban of Snow Lotus HIV/AIDS Education Institute. The alleged reason was that the organization was not registered as an NGO but was carrying out activities as such. At the same time, they also threatened me and said I should “immediately stop those illegal activities, otherwise the organization would be sanctioned according to regulations issued by the relevant legislation, the legal code of administrative sanctions and the relevant departments”.
After that, my residence was closed down and the materials, articles, hard drives and computer in Snow Lotus were confiscated. During this process, I argued with them, closed my personal email account but they didn’t show any consideration. I received a hard psychological blow and was brought to tears several times. I opened the window, willing to jump out as a sign of protest, but they just sat by unconcerned. They didn’t show the slightest intention to stop me. Only one of my teachers held me back.
From 4 October, many Snow Lotus volunteers, myself included, were the object of several interrogations. We had to bear a lot of pressure and great psychological strain. Moreover, I received threats and this made me lose all sense of safety. Today’s process of confiscation was also a psychological trauma for me. I had to leave Urumuqi, a city which I love and for which I have worked hard to develop work on HIV/AIDS prevention.
Therefore, I would like to express my opinion with regard to the ban of Snow Lotus HIV/AIDS Education Institute:
1. NGOs have made a great contribution to work on HIV/AIDS prevention and their work has been encouraged by the central government.
For example, on 2 February 2006, the vice secretary of the Ministry of Health Wang Longde attended the inauguration of the World Health Organization (WHO) West Pacific Health Society Decisive Factor Committee and expressed that the Chinese government encouraged NGOs to participate in work for HIV/AIDS prevention and to make more contributions to this field.
2. The work of unregistered NGOs has already received national and international recognition.
For example, on 26 February 2006, on the occasion of the inauguration of the 15th China Global Fund Country Coordinating Mechanism (CCM), the chairman of the CCM and the vice secretary pointed out: “non registered organizations may attend the CCM conferences and all sorts of group conferences”.
3. The ban of Snow Lotus by the authorities goes against the government’s declaration to encourage NGOs work on HIV/AIDS prevention as well as against the common understanding between
4. The suspension from school of those 19 students suffering from Hepatitis B constitutes immoral behavior as well as an act of discrimination and to address an appeal can only be regarded as an act of justice. The distribution of common knowledge on Hepatitis B by Snow Lotus volunteers is also legitimate.
5. Appeal to the local authorities to cancel the ban on “Snow Lotus HIV/AIDS Education Institute”.
6. Appeal to the local authorities to stop harassing and threatening Snow Lotus volunteers and to stop harassing and threatening my parents.
2006年10月18日我的自述
(作者置顶)
民间艾滋病组织“雪莲花艾滋病教研项目”被当地权力部门突然取缔
民间艾滋病工作者常坤受到当地权力部门恐吓威胁,被迫离开乌鲁木齐
常坤
我叫常坤,今年21岁,现为新疆师范大学四年级学生。原“雪莲花艾滋病教研项目”总协调人。
“雪莲花艾滋病教研项目”组织,成立于
自2005年以来,新疆雪莲花艾滋病教研项目已涉足校园宣教动员、受艾滋病影响的儿童、治疗和药物倡导、毒品、同性恋、乙肝歧视等领域,促进新疆高校4个学生艾滋病健康社团、若干个学生红丝带活动组的建立及各民族学生在艾滋病防治中的参与,举办了“2005新疆第二届大学生与艾滋病论坛”,组织新疆高校同伴教育,建立高校安全套免费发放点,对受艾滋病影响的儿童进行人文关怀,组织艾滋病病毒感染者第一次走进新疆高校,组织新疆青年同志自我认同讨论和艾滋病知识学习,组织公众参观新疆美沙酮维持治疗门诊,组织公众参加感染者的药物使用分享会议,帮助因疾病而引起被休学学生通过法律途径解决诉求,建立了一套信息发布和信息分享沟通渠道,定期出版《雪莲花艾滋简讯》,建立的公开邮件组已有成员千余人。2006年,雪莲花成功申请了“全球艾滋病、结核和疟疾基金”的NGO项目。
2006年5月,在全国草根非政府组织全球基金研讨协商会上,“雪莲花艾滋病教研项目”组织当选为中国艾滋病工作民间组织全国(工作网络)联席会议理事会成员。2006年8月,“雪莲花艾滋病教研项目”组织当选为中国艾滋病工作民间组织全国(工作网络)联席会议轮值主席单位。
自2005年11月起,“雪莲花”还开展了乙肝防治宣教工作,宣教乙肝科普常识,倡导消除乙肝歧视。
2006年9月,发生了乌鲁木齐市第十五中学等四所中学的19名乙肝携带者初中一年级学童被教育部门强制退学的严重歧视事件。在向学生家长等人了解情况后,我于
自从
在此,我要对“雪莲花艾滋病教研项目”被取缔一事表达我的如下意见:
1.在中国的艾滋病防治工作中,民间组织发挥了重要的作用,是中央政府所表态鼓励的。
例如,
2.未登记注册的艾滋病民间组织开展工作,得到了国内、国际的广泛认可。
例如,
3.当地权力部门取缔“雪莲花艾滋病教研项目”组织,违背了“中国政府鼓励民间组织参与艾滋病防治工作”的表态,违背了我国政府和国际社会对未登记注册民间组织的基本共识。
4.19名乙肝携带者学童被乌鲁木齐教育部门强制退学,是不人道的的歧视行为,我本人代替被退学、被歧视的乌鲁木齐乙肝携带者学童求助,是正义的;“雪莲花”的志愿者进行乙肝防治常识的宣教工作,是正当的。
5.呼吁当地权力部门尽快取消对“雪莲花艾滋病教研项目”组织的取缔。
6.呼吁当地权力部门不要继续骚扰和恐吓“雪莲花艾滋病教研项目”的志愿者,不要骚扰和恐吓我的父母。
常坤10月18日离校后给学校领导的一封信
(作者置顶)
常坤10月18日离校后给学校领导的一封信
尊敬的校、院、系领导:
您们好!
我叫常坤,是新疆师范大学法经学院2003级法学5班的学生。现就我近期不能回到学校的情况向您们做一个汇报说明。
我从2003年入校以来,就积极响应国家对大学生的全面发展素质教育的教育方针和回报社会的号召,积极参与了许多社会公益活动,如环保活动、捐献造血干细胞的活动、残疾儿童助教活动,以及艾滋病防治宣教活动和乙肝防治宣教活动。参与环保调研项目数项,开展独立课题调查数项,在乌鲁木齐市聋人学校支教义工两年,是新疆第一个造血干细胞志愿捐献者等,并且先后参与创建了两个公益组织“博闻公益服务社”和“新疆雪莲花艾滋病教研项目”组织。先后成功申请了国家级的健康宣教项目:中国全球基金第四轮艾滋病草根非政府组织项目和中国肝炎防治基金会“阳光科普志愿者”项目,及其他一些民间组织项目及其子项目等。
我从事这些社会公益工作,完全是抱着奉献社会、服务弱势人群之心,几年来,把全部的课余时间都投入了进去,而且自己还从自己的生活费中节约用于活动开支。我本人生活俭朴、朴素,这些都是有目共睹的,从事这些社会公益工作,主要是希望利国、利民,并对社会贡献个人锦薄之力。我父母也从开始的不支持不理解到理解,并为我购买笔记本电脑两台、移动硬盘1部等支持我参与这些工作,目前这些物品都在被查封。还有曾经为我的个人物品的一台HP打印机,我已经承诺捐献给“雪莲花”组织。
由于我的年轻、缺乏社会经验,因而在从事这些工作中难免有考虑不周之处,也不可避免地会出现这样那样的缺点和错误,对于校、院、系领导和各界的批评和指导,我会虚心接受,若因此对校方与师长同学造成困扰之处,亦深感歉意,我也希望能够得到校、院、系领导和各界对我的批评和指导。
我在校的这几年里,深切地感觉到了校、院、系领导对学生的关怀,各级领导确确实实是在秉承着教育树人的理念,培养学生们的德智体美劳等各方面的素质,为学生们的成长付出了大量的心血和无比的爱心。即使是在今年十月份我受到公安部门的调查以来,校、院、系领导也是和风细雨地对我进行劝说和沟通,而不是粗暴地对待,在我一度想要跳楼时,也是老师把我拉住,对于所有这一切,我都非常感谢,我深切地感到,师生情谊深重,和学生最贴心的,还是学校的各级领导
我目前已经是大四,功课还有部分没有完结,实习业已基本完成,实习报告需要留待时日,而我的同学们要么进入复习考研的紧张学习阶段,要么进入紧张的求职阶段,我本人也需要积极寻找毕业后的工作去向。由于受到的刺激,自己身体的强烈生理反应,我可能会继续有一段时间不能回到学校。在此期间,对于社会公益工作我会较少的参与,对于因我而起的相关事宜,我也将避免参与,我关掉了我的手机等联系方式。我会积极努力地自修剩余不多的功课,积极努力地撰写毕业论文,使得我的学习任务和论文任务能够顺利完成。
此致
敬礼!
常坤
2006年10月31日
新疆新闻在线采访新疆造血干细胞捐献第一人常坤:爱心重燃生命之火
(作者置顶)
新疆新闻在线采访新疆造血干细胞捐献第一人常坤:爱心重燃生命之火 爱心重燃生命之火 |
新疆新闻在线网10月20日消息(记者贺飞、沈媛): 昨天自治区红十字会和乌鲁木齐市血液中心联合举行造血干细胞血样采集工作。 前来捐献血样的大多数是大学生,他们在完成报名、填表等工作之后就安静有序的走进血样采集室捐血。进行造血干细胞血样采集是为了推动中国造血干细胞捐献者资料库新疆分库的建设,新疆分库负责人刘芳介绍说:"建立中国造血干细胞捐献者资料库新疆分库目的就是挽救众多的白血病等血液疾病患者。作为一个健康的人他有3000克造血干细胞,你捐出10克就能挽救一个人的生命,但目前,大众对于捐献的过程不太了解,我们的知识也不够普及,所以我们呼吁各族群众积极踊跃,关心支持我们这项事业,参与到捐献造血干细胞爱心的行列中来。" 来自新疆师范大学、新疆艺术学院、新疆大学、新疆轻工职业技术学院等四家高校学联、学生社团负责人准备发起成立新疆造血干细胞大学生志愿捐献者联盟。新疆师范大学博闻公益服务社负责人、新疆师范大学法经学院学生常坤不仅是这一联盟的策划者、发起人,同时也是新疆开展造血干细胞血样捐献第一人,他告诉记者:"我们要把这个知识的普及放到更多的高校去做,但是我们不是盲目的去追求大学生的捐献率,而是在大学生中间普及造血干细胞的知识,目前,通过资料来看,需要帮助的人太多,而这方面的意识没有起来。" 据了解,目前,我区已有1000多名志愿者自愿报名捐献了造血干细胞血样,社会各界为此捐款60多万元,中国造血干细胞捐献者资料库新疆分库的建成将实现造血干细胞资源全球共享。 |
2005年的部分活动文章连接
(作者置顶)
断断续续的自我独白——与自己的对话
(作者置顶)
这是草稿!!!
断断续续的自我独白——与自己的对话
《民间》是本好杂志,她的主编梁晓燕也是很关心人的人。这本好杂志和这个很关心人的人却让我写一个关于我心路的文章,而竟然为等我的文章还要推迟发行一个星期,这让我确实深感荣幸,反复推脱,却不能理占上风。本早已不愿意提起自己,受如此邀约,接之下却无从下笔,深恐对不起各位。
他们是看到我的《我为什么选择了为艾滋病防治而努力一生(上)》这个文章的。而没有看到我写的续,才让我来给《民间》写个文章的。实际上,我在